Hello again. Sorry if you feel like this blog has been taken over by EB. I have a lot of other things to post about and I will get to them, after this week. EB is very much a part of our daily lives and I want it to be a part of your life too. I want you talking about it. I want you telling people about it. I want YOU blogging about it, facebooking about it. EVERYTHING! Join the Webb family in getting the word out about EB.
I literally talked to everyone I saw about EB yesterday. I talked about it at physical therapy, dance class, facebook, blogging and on a private paretning board I am blessed to be a part of. Everyone is asking questions and I am doing my best to answer them. Who did you talk to about EB yesterday? Even if you just call a family member and educate them on it, that is one more person that knows about EB.
Please go to dEBra and look around and learn a few things, donate a few bucks in Jackson's name while you are there! Or go to EB Nurse and learn a few more things.
Knowing is half the battle people.
Just think of my little man for a second and really think about what he wants you to do.
How can you say no to this face anyway?
Tuesday, October 26, 2010
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2 comments:
AWWW, such a sweet picture! I sent an e-mail about EB to everyone I know today...and I posted the flyer in several places at work! I will make a donation soon! Love Nana/Mom
OK, my question is this...how do people respond to Jackson when you take him out in public? Do they comment or ask you questions about his blisters? how do you respond?
Love you, Mom
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