The number one question I am asked as an EB mom is "How do you do it?"
I never really know how to answer that question. I don't really know how I do it. I (we) just do it.
God gave us these wonderful children and I just thank Him every.single.day. for my kids. I pray every day for Him to show me the way to take care of ALL of my children, not just Jackson. I can't think of a single day that goes by that this parenting thing is easy. Of course EB is an extra challenge but really that is all it is to us, just another challenge.
Showing posts with label Parenting. Show all posts
Showing posts with label Parenting. Show all posts
Sunday, July 24, 2011
Tuesday, May 3, 2011
Top 10 Reasons Moms of Kids with Special Needs Rock..........
I think this is a great list, not only for moms of special needs children, but for parents in general.
A friend of mine (whose daughter has down syndrome) sent me this list and when I opened it I thought "Wow, I'm a special needs mom?" I know I am, but I never think of myself as such. It kinda shocked me, even though I know I am. I don't think I have ever said it out loud. Today is the first day that I actually said it out loud or typed it in an email. Almost one whole year later and I JUST said it.
I thanked my friend for sending me the link and told her that I had never said it before. She replied with some beautiful words to me. I hope she does not mind me paraphrasing the messages. Some of the things in the message are way deep and way personal and although I love you all, it was a very specail and very private moment for me in which I will never in this lifetime forget.
She told me that I had once told her, when our girls were younger, that I admired her and another mom of a special needs child very much. I had said it on a public chat board that we both frequented. That statement stuck with her.I can't beleive that something I typed at least 6 years ago stuck with her. Although I have always admired her, I never remember really telling her so. She returned some of those same words to me today, and more. Talk about making a momma cry. I was in full blown tears reading her message to me. She said some things to me that only a special needs mother could say to another special needs mother. She even gave me some advice since I am now part of the "super secret special needs parents club".
I have ALWAYS loved and respected this person as a mother and a friend but now there are no words to describe the way I feel about her. Thanks Friend. Thanks for making me realize that I am not alone in the "super secret special needs parents club". Thanks for making me realize that its ok to have bad days and its ok to get frustrated. What an amazing day for me personally.
Anyway- this list was posted at Love That Max in May of 2010 and again this week at Lilas Miracle Life
1) Because we never thought that "doing it all" would mean doing this much. But we do do it all -- and then some.
2) Because we've discovered patience we never knew we had.
3) Because we are willing to do something 10 times, 100 times or 1,000 times if that's what it takes for our kids to learn something new.
4) Because we have heard doctors tell us the worst, and we've refused to believe them. Take THAT, naysaying doctors of the world!
5) Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6) Because we gracefully handle the stares, the comments, the rude remarks. (Well, mostly gracefully.)
7) Because we manage to get ourselves together and get out the door looking pretty good. Heck, we even make sweatpants look good!
8) Because we are strong. Man, are we strong. Who knew we could be this strong?
9) Because we aren't just moms, wives, cooks, cleaners, chauffeurs and women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches and cheerleaders. Whew!
10) Because we work overtime every single day.
I am currently struggling with #6 but I guess in time I will get over it. The mean look at people give me can be oh so hurtful. Sometimes people look at me like I am the scum of the earth. They assume I abuse my child because he has sores on him :( It breaks my heart to think people think that I could ever do that to my child.
Morissa
A friend of mine (whose daughter has down syndrome) sent me this list and when I opened it I thought "Wow, I'm a special needs mom?" I know I am, but I never think of myself as such. It kinda shocked me, even though I know I am. I don't think I have ever said it out loud. Today is the first day that I actually said it out loud or typed it in an email. Almost one whole year later and I JUST said it.
I thanked my friend for sending me the link and told her that I had never said it before. She replied with some beautiful words to me. I hope she does not mind me paraphrasing the messages. Some of the things in the message are way deep and way personal and although I love you all, it was a very specail and very private moment for me in which I will never in this lifetime forget.
She told me that I had once told her, when our girls were younger, that I admired her and another mom of a special needs child very much. I had said it on a public chat board that we both frequented. That statement stuck with her.I can't beleive that something I typed at least 6 years ago stuck with her. Although I have always admired her, I never remember really telling her so. She returned some of those same words to me today, and more. Talk about making a momma cry. I was in full blown tears reading her message to me. She said some things to me that only a special needs mother could say to another special needs mother. She even gave me some advice since I am now part of the "super secret special needs parents club".
I have ALWAYS loved and respected this person as a mother and a friend but now there are no words to describe the way I feel about her. Thanks Friend. Thanks for making me realize that I am not alone in the "super secret special needs parents club". Thanks for making me realize that its ok to have bad days and its ok to get frustrated. What an amazing day for me personally.
Anyway- this list was posted at Love That Max in May of 2010 and again this week at Lilas Miracle Life
1) Because we never thought that "doing it all" would mean doing this much. But we do do it all -- and then some.
2) Because we've discovered patience we never knew we had.
3) Because we are willing to do something 10 times, 100 times or 1,000 times if that's what it takes for our kids to learn something new.
4) Because we have heard doctors tell us the worst, and we've refused to believe them. Take THAT, naysaying doctors of the world!
5) Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6) Because we gracefully handle the stares, the comments, the rude remarks. (Well, mostly gracefully.)
7) Because we manage to get ourselves together and get out the door looking pretty good. Heck, we even make sweatpants look good!
8) Because we are strong. Man, are we strong. Who knew we could be this strong?
9) Because we aren't just moms, wives, cooks, cleaners, chauffeurs and women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches and cheerleaders. Whew!
10) Because we work overtime every single day.
I am currently struggling with #6 but I guess in time I will get over it. The mean look at people give me can be oh so hurtful. Sometimes people look at me like I am the scum of the earth. They assume I abuse my child because he has sores on him :( It breaks my heart to think people think that I could ever do that to my child.
Morissa
Wednesday, April 27, 2011
Now that's more like it!
It's the little things like this that make a momma proud! It is good to know that she write about more than her dad and I scarring her emotionally :)
Translation:
Morissa (she writes my name a lot, she likes it!)
I love Easter because Jesus roasen from the dead.
Not just about candy. I love Easter!
Oh and about that parenting award, turns out that your kids nominate you for things like that. Nylin has informed me that she doesn't think I will win since all I do is embarrass her by putting her writings online. She demanded I take it down.
HAHAHAHAAAA
Not a chance kid.
Thursday, April 21, 2011
Maybe Next Year!
After this I doubt I will be winning any parenting awards!
Nylin's teacher sent home a nice little note asking for my permission to submit one of Nylin's stories to Paw Prints. Paw Prints is a showcase of writing from each grade level. One story from each grade level is picked per quarter. I was so proud! I signed the release and sent it back to school immeaditly.
The next day I get the story sent home and Oh. My. Goodness.
Nylin's teacher sent home a nice little note asking for my permission to submit one of Nylin's stories to Paw Prints. Paw Prints is a showcase of writing from each grade level. One story from each grade level is picked per quarter. I was so proud! I signed the release and sent it back to school immeaditly.
The next day I get the story sent home and Oh. My. Goodness.
Translation for those of you not well versed in 1st grade:
My dog and my other dog fight and wrestle. My Mom Morissa says don't go by them. They also jump on me! They bite. My dog Tank is the littlest he is only 4 months
SO CUTE RIGHT??
old. Buddy my other dog is older. But I don't know how old he is. But he is older than Tank.
(still cute right???)
We have to get rid of Tank until Buddy dies.
(uh oh)
Why? Because we can't handle two dogs.
So we have to do it. We might get another dog after though.
It's very hard to get over. I am very very sad.
(could she make a mom feel any worse?)
Did you ever give a pet away? We can't change it. Can you help?
(yep, feeling worse!)
and the best part...you turn the page and see this.....
Do you have an answer yet?
She did a great job with her writing but OMG I feel like a heel. The only time we ever really mentioned getting rid of the dog was when he bit one of her friends! Nylin never once mentioned that she was slightly upset about getting rid of the dog either. Never. Well until this story.
So for once in my life I am not rooting for my daughter to "win" and be published.
Tuesday, November 9, 2010
So proud!
Kara is doing so well with potty training!!!!! We just decided over the weekend it was time and she went with it. She is so excited about wearing "und ware". We have had a few accidents but most of them are when she is running to the potty and she can;t get her pants down in time.
It will be GREAT not to buy diapers anymore!!!!!!!!!!!!!!!!!!!!!
Love you Kara Ann, You are such a big girl and Mommy is SO proud of you!!!!
It will be GREAT not to buy diapers anymore!!!!!!!!!!!!!!!!!!!!!
Love you Kara Ann, You are such a big girl and Mommy is SO proud of you!!!!
Wednesday, August 5, 2009
Best compliment of my life.
I received the best compliment of my life the other day. Someone told me that someone else said that they love my kids so much and then proceeded to say that my kids are well behaved and have the best mother ever.
AWW! Who knew such a simple complement would be the best of my life? LOL
Just knowing that other people see how hard Jason and I try and how much work we put into being good parents makes my whole day. The fact that my kids actually behave in front of other people and give me a good name makes me even happier ;)
I hope the person who said this reads my blog today and realizes what an impact that little comment made on me. Thanks!
AWW! Who knew such a simple complement would be the best of my life? LOL
Just knowing that other people see how hard Jason and I try and how much work we put into being good parents makes my whole day. The fact that my kids actually behave in front of other people and give me a good name makes me even happier ;)
I hope the person who said this reads my blog today and realizes what an impact that little comment made on me. Thanks!
Monday, August 3, 2009
I am locking my blog- send email if you would like to be added to reader list.
I will send invites to people to view my blog. After hearing the following story I have no other choice. I also have taken my blog off of search engines. I hope you all continue you to read my blog and I hope even more that I find more time to post ;)
ABINGTON, Mass. -- The dangers of the Internet struck home for an Abington mother when she found her own child for sale on Craigslist as part of what appears to be an international adoption scam.
Seven-month old Jacob Brennan was busy playing with toys when his mother, Jenni, got what she called a shocking e-mail.
"Out of the blue some girl e-mailed us and said 'I think you should know someone's using Jake's picture in an adoption scam'," said Brennan, who said she found the message hard to believe.
Brennan followed the link included in the e-mail and found an ad on the Craigslist Web site. The ad promised that a "cute baby boy" was available for adoption, but did not include a picture.
Brennan decided to play detective and sent an e-mail to the address listed. She quickly received a picture in her inbox.
"The picture he sends you is a picture of Jake," Brennan said. "It was horrifying. I never would have thought in a million years that I would have the emotional reaction that I did."
The e-mail claimed her son is Canadian born and living at an orphanage in Cameroon and said that for $300 she could begin the adoption process.
"Then it was my child and I realized he was being used in a scam. I got really angry, incredibly angry," she said.
Brennan discovered that the picture was taken from her own family blog.
"I know other people had access to it, but I didn't think anyone would really want to (take the picture from it)," she said.
Brennan called both the FBI and the Massachusetts Attorney General's office. Yahoo told her they have now shut down the e-mail account used in the posting.
Brennan has also now restricted access to her family blog.
ABINGTON, Mass. -- The dangers of the Internet struck home for an Abington mother when she found her own child for sale on Craigslist as part of what appears to be an international adoption scam.
Seven-month old Jacob Brennan was busy playing with toys when his mother, Jenni, got what she called a shocking e-mail.
"Out of the blue some girl e-mailed us and said 'I think you should know someone's using Jake's picture in an adoption scam'," said Brennan, who said she found the message hard to believe.
Brennan followed the link included in the e-mail and found an ad on the Craigslist Web site. The ad promised that a "cute baby boy" was available for adoption, but did not include a picture.
Brennan decided to play detective and sent an e-mail to the address listed. She quickly received a picture in her inbox.
"The picture he sends you is a picture of Jake," Brennan said. "It was horrifying. I never would have thought in a million years that I would have the emotional reaction that I did."
The e-mail claimed her son is Canadian born and living at an orphanage in Cameroon and said that for $300 she could begin the adoption process.
"Then it was my child and I realized he was being used in a scam. I got really angry, incredibly angry," she said.
Brennan discovered that the picture was taken from her own family blog.
"I know other people had access to it, but I didn't think anyone would really want to (take the picture from it)," she said.
Brennan called both the FBI and the Massachusetts Attorney General's office. Yahoo told her they have now shut down the e-mail account used in the posting.
Brennan has also now restricted access to her family blog.
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