Epidermolysis bullosa (EB) is a rare, genetic blistering disorder.
The phrase epidermolysis bullosa refers to the outer layer of skin (the epidermis) and “lysis,” representing a breakdown or deconstruction. “Bullosa” is a kind of blister.” The name literally refers to the breakdown and blistering of the outer layer of skin.
It is caused by an abnormality in one of the proteins found in the skin, whose function is to hold the layers of the skin together. When one of these proteins is absent or diminished the skin becomes fragile. If this fragile skin is subjected to even minor friction or trauma, the skin separates, fluid seeps into the detached area and a blister is formed.
Blisters may be located in the upper layer of skin (the epidermis) resulting in EB Simplex, in the lower layer of skin (the dermis) resulting in Dystrophic EB, or at the junction of these two layers, resulting in Junctional EB.
Jackson has and will always have EB Simplex. It does not just go away and it is not contagious. It is genetic.
There is no cure for EB.There is only prevention of blisters and daily wound care.
For more information or to donate please visit EB NURSE and/or Debra.
