Jackson and I slept very well last night. I was able to change his dressing around 10PM and then off to dreamland we went :)
We woke up at 6:30 to the plastic surgeon. He wanted to take a look at Jackson's finger. I felt so bad for Jackson just waking up and having to deal with his stupid finger. Luckily the plastics guy just looked at it and did not really mess with it too much. He left it open and told me that I could pack it when Dr. W arrived.
It has been so nice that the doctors and nurses here have let me take a very active role in Jackson's care. They realize that I deal with Jackson and his skin on a dialy basis and they just let me assist or even lead certain procedures. It makes me feel so mch more at ease knowing that everyone here is on our side. We did have a little trouble with someone that put an IV in but our nurse handled that situation for us.
We should be able to go home today. We are just waiting on the lab results to come back. We know that he has staph but staph can be sensitive to certian medications and not others. He is currently on Clindamyacin. Unfortunantly clinda tastes and smells like crap. Taking it orally would be a challenge at home. We are hoping the staph is sensitive to something like bactrim (which is an awesome grape flavor already- no extra $2.99 fee from Walgreens!).
We will need to follow up with Dr. W and plastics this week. Hopefully it heals perfectly and we will not land back in this place! I love Cardinal Glennon but I want my bed!!!!!!!
Monday, May 23, 2011
Sunday, May 22, 2011
Hospital updates.
It occured to me late last night that I could be using my blog to update everyone on Jackson. Duh.
Here is a quick recap of the last few days- this was typed to a group of my girlfriends :)
I will keep posting updates here.
THURSDAY---
Things are a little scary right now. Jax may have to have surgery on his finger. I am freaking out because I may not be here when he does. Nylin has recital for the next 2 days. She has 4 costume changes and 4 hair changes. I am the only one that can do that. I can't leave her high and dry because her brother is sick. It makes me sick to even have to think about missing him go to surgery though.
We will be here until AT LEAST Sunday. Unfortunately the infection is on his finger which is really bad. The infection can creep into his bone (which according to the xrays has not happened yet) or it can cause circulation problems, both would be really bad. We are waiting for the orthopedic doctors and plastic surgery to come take a look now but as it stands, Jackson may need surgery today or sometime this weekend. The antibiotic seems to be helping with the redness of the infection but not the swelling.
I attached a few picture of his poor little finger so you can see what I mean. (sorry for the quality, it was taken on my cell) It is just terrible. Thankfully he has responded well to the pain medications and is in a good mood. He is also sleeping well.
__________________________________________________
UPDATE FRIDAY@ 9:50 PM
I talked to surgery right before I left (@ 2:30 to take care of Nylin) and they assured me that no surgery was needed and they did not even think it was infected, just swollen. They were going to try some topical cream and go from there.
At 6:00 Jason called and said that the head surgeon was coming to take a look. At 610 he called and told me they were going to sedate him and get the fluid out. I was freaking.
They ended up getting a little over 1 ml of fluid out of there. They gave him vicodin and he was pretty calm through it.
They then put a new IV in, this time in his foot. He was also calm for that since he was doped up!
Nylin and I came up to the hospital to give him hugs and kisses and calm my nerves a little.
I had a nervous break down right after we left the rehearsal. My father in law called to ask if he could keep Jace and Kara. It was just one more thing I had to decide and I lost it, lol.
____________________________________
SATURDAY UPDATE @ 10ish--
We are still at the hospital. We will be here till at least Monday.
Jackson is getting the IV antibiotics every 8 hours still. He just got his last dose of vicodin a little while ago. If he is really in a lot of pain we will have the doc order more.
his finger looks terrible!
______________________________________
SUNDAY UPDATE
The doctor came in this morning and checked his finger out. There was a pocket of pus forming but we could not get to it to get it out. It was too hard to get the wound packed last night so it closed up and formed that pocket.
The plastic surgeon came back in here a while later and managed to break open the pocket and get the pus out. We put a corner of gauze in the wound to keep it open. Hopefully that will stop it from happening again.
I almost threw up when they were messing with it. I cant explain it but having someone else mess with his skin FREAKS ME OUT. I do this with him everyday and I can handle it just fine but watching someone else do it makes me ill.
We will be here at least another 24 hours so they can make sure that his wound does not heal from the outside in.
The cultures came back and it is staph. Poor guy.
Here is a quick recap of the last few days- this was typed to a group of my girlfriends :)
I will keep posting updates here.
THURSDAY---
Things are a little scary right now. Jax may have to have surgery on his finger. I am freaking out because I may not be here when he does. Nylin has recital for the next 2 days. She has 4 costume changes and 4 hair changes. I am the only one that can do that. I can't leave her high and dry because her brother is sick. It makes me sick to even have to think about missing him go to surgery though.
We will be here until AT LEAST Sunday. Unfortunately the infection is on his finger which is really bad. The infection can creep into his bone (which according to the xrays has not happened yet) or it can cause circulation problems, both would be really bad. We are waiting for the orthopedic doctors and plastic surgery to come take a look now but as it stands, Jackson may need surgery today or sometime this weekend. The antibiotic seems to be helping with the redness of the infection but not the swelling.
I attached a few picture of his poor little finger so you can see what I mean. (sorry for the quality, it was taken on my cell) It is just terrible. Thankfully he has responded well to the pain medications and is in a good mood. He is also sleeping well.
__________________________________________________
UPDATE FRIDAY@ 9:50 PM
I talked to surgery right before I left (@ 2:30 to take care of Nylin) and they assured me that no surgery was needed and they did not even think it was infected, just swollen. They were going to try some topical cream and go from there.
At 6:00 Jason called and said that the head surgeon was coming to take a look. At 610 he called and told me they were going to sedate him and get the fluid out. I was freaking.
They ended up getting a little over 1 ml of fluid out of there. They gave him vicodin and he was pretty calm through it.
They then put a new IV in, this time in his foot. He was also calm for that since he was doped up!
Nylin and I came up to the hospital to give him hugs and kisses and calm my nerves a little.
I had a nervous break down right after we left the rehearsal. My father in law called to ask if he could keep Jace and Kara. It was just one more thing I had to decide and I lost it, lol.
____________________________________
SATURDAY UPDATE @ 10ish--
We are still at the hospital. We will be here till at least Monday.
Jackson is getting the IV antibiotics every 8 hours still. He just got his last dose of vicodin a little while ago. If he is really in a lot of pain we will have the doc order more.
his finger looks terrible!
______________________________________
SUNDAY UPDATE
The doctor came in this morning and checked his finger out. There was a pocket of pus forming but we could not get to it to get it out. It was too hard to get the wound packed last night so it closed up and formed that pocket.
The plastic surgeon came back in here a while later and managed to break open the pocket and get the pus out. We put a corner of gauze in the wound to keep it open. Hopefully that will stop it from happening again.
I almost threw up when they were messing with it. I cant explain it but having someone else mess with his skin FREAKS ME OUT. I do this with him everyday and I can handle it just fine but watching someone else do it makes me ill.
We will be here at least another 24 hours so they can make sure that his wound does not heal from the outside in.
The cultures came back and it is staph. Poor guy.
Thursday, May 12, 2011
And the countdown begins!
We leave for Gulf Shores in less than a month! WOOT WOOT!
I am so EXCITED to take the kids to the beach for the first time. Jason and I went there 5 years ago but we left Nylin back here with my parents. It was AWESOME. It will be even more awesome with the kids. They are really just going to love it!
I can't wait to build a sandcastle with my kids while sipping a Corona. Oh yeah!
I am so EXCITED to take the kids to the beach for the first time. Jason and I went there 5 years ago but we left Nylin back here with my parents. It was AWESOME. It will be even more awesome with the kids. They are really just going to love it!
I can't wait to build a sandcastle with my kids while sipping a Corona. Oh yeah!
Tuesday, May 10, 2011
Happy Birthday Jace!
My Baby Boy is 4 years old today. I guess that means I have to stop calling him Baby Boy :(
Just a few minutes old!
about 5 weeks old
One Year
Two Years
Three Years!
And now 4!
Tuesday, May 3, 2011
Top 10 Reasons Moms of Kids with Special Needs Rock..........
I think this is a great list, not only for moms of special needs children, but for parents in general.
A friend of mine (whose daughter has down syndrome) sent me this list and when I opened it I thought "Wow, I'm a special needs mom?" I know I am, but I never think of myself as such. It kinda shocked me, even though I know I am. I don't think I have ever said it out loud. Today is the first day that I actually said it out loud or typed it in an email. Almost one whole year later and I JUST said it.
I thanked my friend for sending me the link and told her that I had never said it before. She replied with some beautiful words to me. I hope she does not mind me paraphrasing the messages. Some of the things in the message are way deep and way personal and although I love you all, it was a very specail and very private moment for me in which I will never in this lifetime forget.
She told me that I had once told her, when our girls were younger, that I admired her and another mom of a special needs child very much. I had said it on a public chat board that we both frequented. That statement stuck with her.I can't beleive that something I typed at least 6 years ago stuck with her. Although I have always admired her, I never remember really telling her so. She returned some of those same words to me today, and more. Talk about making a momma cry. I was in full blown tears reading her message to me. She said some things to me that only a special needs mother could say to another special needs mother. She even gave me some advice since I am now part of the "super secret special needs parents club".
I have ALWAYS loved and respected this person as a mother and a friend but now there are no words to describe the way I feel about her. Thanks Friend. Thanks for making me realize that I am not alone in the "super secret special needs parents club". Thanks for making me realize that its ok to have bad days and its ok to get frustrated. What an amazing day for me personally.
Anyway- this list was posted at Love That Max in May of 2010 and again this week at Lilas Miracle Life
1) Because we never thought that "doing it all" would mean doing this much. But we do do it all -- and then some.
2) Because we've discovered patience we never knew we had.
3) Because we are willing to do something 10 times, 100 times or 1,000 times if that's what it takes for our kids to learn something new.
4) Because we have heard doctors tell us the worst, and we've refused to believe them. Take THAT, naysaying doctors of the world!
5) Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6) Because we gracefully handle the stares, the comments, the rude remarks. (Well, mostly gracefully.)
7) Because we manage to get ourselves together and get out the door looking pretty good. Heck, we even make sweatpants look good!
8) Because we are strong. Man, are we strong. Who knew we could be this strong?
9) Because we aren't just moms, wives, cooks, cleaners, chauffeurs and women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches and cheerleaders. Whew!
10) Because we work overtime every single day.
I am currently struggling with #6 but I guess in time I will get over it. The mean look at people give me can be oh so hurtful. Sometimes people look at me like I am the scum of the earth. They assume I abuse my child because he has sores on him :( It breaks my heart to think people think that I could ever do that to my child.
Morissa
A friend of mine (whose daughter has down syndrome) sent me this list and when I opened it I thought "Wow, I'm a special needs mom?" I know I am, but I never think of myself as such. It kinda shocked me, even though I know I am. I don't think I have ever said it out loud. Today is the first day that I actually said it out loud or typed it in an email. Almost one whole year later and I JUST said it.
I thanked my friend for sending me the link and told her that I had never said it before. She replied with some beautiful words to me. I hope she does not mind me paraphrasing the messages. Some of the things in the message are way deep and way personal and although I love you all, it was a very specail and very private moment for me in which I will never in this lifetime forget.
She told me that I had once told her, when our girls were younger, that I admired her and another mom of a special needs child very much. I had said it on a public chat board that we both frequented. That statement stuck with her.I can't beleive that something I typed at least 6 years ago stuck with her. Although I have always admired her, I never remember really telling her so. She returned some of those same words to me today, and more. Talk about making a momma cry. I was in full blown tears reading her message to me. She said some things to me that only a special needs mother could say to another special needs mother. She even gave me some advice since I am now part of the "super secret special needs parents club".
I have ALWAYS loved and respected this person as a mother and a friend but now there are no words to describe the way I feel about her. Thanks Friend. Thanks for making me realize that I am not alone in the "super secret special needs parents club". Thanks for making me realize that its ok to have bad days and its ok to get frustrated. What an amazing day for me personally.
Anyway- this list was posted at Love That Max in May of 2010 and again this week at Lilas Miracle Life
1) Because we never thought that "doing it all" would mean doing this much. But we do do it all -- and then some.
2) Because we've discovered patience we never knew we had.
3) Because we are willing to do something 10 times, 100 times or 1,000 times if that's what it takes for our kids to learn something new.
4) Because we have heard doctors tell us the worst, and we've refused to believe them. Take THAT, naysaying doctors of the world!
5) Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6) Because we gracefully handle the stares, the comments, the rude remarks. (Well, mostly gracefully.)
7) Because we manage to get ourselves together and get out the door looking pretty good. Heck, we even make sweatpants look good!
8) Because we are strong. Man, are we strong. Who knew we could be this strong?
9) Because we aren't just moms, wives, cooks, cleaners, chauffeurs and women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches and cheerleaders. Whew!
10) Because we work overtime every single day.
I am currently struggling with #6 but I guess in time I will get over it. The mean look at people give me can be oh so hurtful. Sometimes people look at me like I am the scum of the earth. They assume I abuse my child because he has sores on him :( It breaks my heart to think people think that I could ever do that to my child.
Morissa
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