Thanks for the picture Courtney!
EB Awareness Week
Today is the first day of EB Awareness Week. I am trying to tell everyone I know about EB.
PLEASE if you have any questions you have been meaning to ask or maybe just thought of, please ask. I want YOU to know as much about it as I do.
No question is a stupid question and no question is too personal. I WANT to talk about it. Do you want to know how to pronounce it? Do you want to know what causes it? ANYTHING, JUST ASK!!!!
I think a lot of people in my life are afraid it will upset me but it doesn't. I makes me happy to talk about it.
EB is so rare and it is REALLY hard to get funding to find a cure. The doctors at Stanford University are trying everyday to find a cure for this devastating disorder but without awareness and funding that will never happen. Please help me help them today by learning something new about EB.
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